Eduardo's Story of Hope "Maricela Came To Save My Life" Maricela Romero is Eduardo’s Easter Seals respite care provider. “She’s nice. We go out for a walk or go to the store. And she helps me keep my room clean,” says Eduardo of Maricela. Maricela has been providing respite for the Eduardo's family for the past four months. This extra support comes as a great relief for Eduardo’s mother, Maria, who has cared for her son through the complications from his surgeries related to his disability. Initially skeptical about receiving help from any organization, Maria received no respite in 2006 when Eduardo had his first surgery. The family qualified for only 24 hours of care per month, and Maria knew she needed much more than that. “I needed a lot of help caring for my son.” She worried that building a relationship with the caregiver would prove impossible if she/he were there only 24 hours a month. Maria explained that it is especially difficult for Hispanics to build trust in situations like this. “We come from a country where there is no help…when you think of allowing someone to come into your house, you’re letting them into your whole life. You’re offering your trust and everything…a lot of Hispanics don’t know services are available. There’s a shortage of bilingual services and it’s often assumed that a program is for English speaking families only.” Due to the generous support of donors and the San Andreas Regional Center, Easter Seals is able to place respite providers like Maricela with Spanish-speaking families. Maricela wants to learn English, and loves being with Eduardo's family. She said that when she first met Eduardo she knew immediately that she could help him. Maricela does help Eduardo's family in a multitude of ways. She brings happiness and laughter to a household that needs the relief. “Eduardo waits for Maricela at the door when it’s time for her to come,” says Maria. “He has to be the one to open the door for her when she arrives.” Maria can’t say enough about the role Maricela has played in her family’s life. "She came to literally save my life," says Maria. "I was in a deep hole with all of the stress. Maricela’s intentions were that she really wanted to help. She really wanted to offer her love. I’m happy most of the time when Maricela is here because she has such a happy presence.” Maria and Maricela have formed an incredible bond during the relatively short time they have known each other. Throughout the interview for this article, the two held hands and cried. Maria says, “Maricela and Eduardo have a fun time and laugh…so that makes me happy too. Every time they are laughing and having fun, I want to get close to them so I can laugh too.” Even though Maricela’s hours will be fewer now that Eduardo is back in school, she plans to stay with Easter Seals because she knows other children need her and she can help them. As for the up-and-coming chef, Maria says that after Eduardo graduates from high school she will do whatever it takes to send him to chef’s school. “Of course I will miss him when he grows up, even though I have another child. He’s a very loving kid. I don’t want to have to think about him going away,” she says with a smile. |